Dr. MJ Bazos MD,
What does congenital heart disease mean?
Congenital means that your baby
was born with it. Heart disease means there is a problem with the heart.
Did I do something during pregnancy
that made my baby have this problem?
It's normal to worry that
something you did could have caused the problem, but most of the time doctors
don't know what caused it. Talk with your family doctor if you're worried that
you caused your baby's heart problem, but don't blame yourself.
I was depressed when I found out my
baby has a heart problem. Is that normal?
Yes. Feeling angry, guilty or
depressed is normal. Knowing that your baby has a heart problem is stressful.
When you first found out about your baby's problem, you may have been in shock.
Is it okay to pick up my baby?
Yes. Try not to be afraid to pick
up or hold your baby. You won't hurt your baby by holding him or her. Your baby
needs your love and attention. Play with your baby, talk to your baby. These
things are important for both of you. Your baby needs to be loved and cared for
just like any other baby.
Why is it
harder for my baby to feed?
with heart disease may get tired easily while they're feeding. If feeding makes
your baby tired, try giving smaller amounts of milk or formula at one time. It
may help to feed the baby more often. Your baby may also need more food because
a heart defect makes the heart work a lot harder. The extra work of your baby's
heart makes your baby burn more calories--just like you burn more calories when
you exercise. For this reason, your baby may need more food to grow.
Can I breast feed my baby?
Yes. Breast feeding a baby with
heart disease can be harder because the baby gets tired so quickly. But breast
milk is the best food for your baby. It helps protect your baby from infections.
An infection could make your baby's heart problem worse. You may need to give
your baby formula too, so he or she can get enough calories.
If you're having trouble breast
feeding, talk with your doctor. Your doctor may suggest that you see a lactation
What about formula?
If you decide to use formula, you
may need to use a special kind that has extra calories so your baby can gain
weight. A pediatric nutritionist or dietitian can help you choose a good
Will my baby develop
Your baby's growth may
be slower because of the heart problem, but there's a good chance that your baby
will sit up, crawl, walk and talk at about the same time other children do.
After the heart problem is fixed, chances are good that your baby will grow up
to be strong and healthy.
Several tests can
show what kind of heart disease your baby has. They can also check on your
baby's condition, to see how the heart is working. Here are some tests your baby
- ECG (short for "electrocardiogram")--An ECG is a
drawing of the baby's heart beat. It shows how well the heart is working.
- Pulse oximetry--This test shows how much oxygen
is in the baby's blood.
- Echocardiogram--This test gives the doctor an
ultrasound "picture" of the baby's heart.
- Chest x-ray--This can show how well the heart is
growing and if your baby's lungs have fluid in them.
- Cardiac catheterization--This test uses dye in
the heart to give the doctor a clear picture of the heart problem.
What treatment will my
baby need for the heart problem?
Many babies with heart disease
need medicine to make their heart stronger or to prevent other problems. It's
very important to give the medicine just the way your doctor tells you to. Try
not to skip a dose. If you do forget a dose, call your doctor to find out if you
should give an extra dose.
about surgery? Do all babies need surgery?
Surgery depends on the type of
heart problem your baby has. Some heart problems have to be fixed as soon as the
baby is born. Other problems can wait until the child is older. Sometimes the
repair takes more than one operation.
After surgery, your baby will stay in
an intensive care unit (ICU) or a few days so the doctors and nurses can keep a
close watch. Tubes and machines keep track of your child's condition. They don't
cause any pain. Many children are back at play just a few days after heart
Where can I go for help?
Support is very important.
Parental support groups let you talk with other parents who are going through
the same thing. You can talk about your fears and share what you know. This can
be very reassuring.
Talk with your
doctor or a hospital social worker to find out about respite care, day care
programs and homemaker services. A counselor may also give you ways to cope with
a sick baby.